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69. Survivor Science Soundbite: Stroke Recovery Grinding Through Recovery with Purpose
69. Survivor Science Soundbite: Stroke Recovery Grinding Th…
Send us a text In this Soundbite, I’m wrapping up the week by diving deeper into the grind of recovery. From running to discipline to the p…
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Dec. 13, 2024

69. Survivor Science Soundbite: Stroke Recovery Grinding Through Recovery with Purpose

69. Survivor Science Soundbite: Stroke Recovery Grinding Through Recovery with Purpose

Send us a text

In this Soundbite, I’m wrapping up the week by diving deeper into the grind of recovery. From running to discipline to the power of showing rather than just telling, this episode focuses on the relentless effort required for progress. I reflect on my own journey from a wheelchair to running and the importance of sharing these moments to inspire and support fellow stroke survivors. Recovery is a grind, and it’s all about taking small, consistent steps each day to improve and adapt.

I also discuss the challenges of connecting with other survivors and building a stronger community to share knowledge, tips, and stories that can make a difference. Whether it’s about recovery goals, social media content, or the transformative power of perseverance, this episode is packed with insights to motivate you on your journey.

Hey there! If you’re a stroke survivor, caregiver, or someone navigating recovery, I want to invite you to check out The Center by Survivor Science. Head over to center.survivorscience.com and join a community that understands what you're going through.

And if you’re not quite ready to join, that’s okay! You can still access free resources at survivorscience.com 

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Medical Disclaimer: All content found on this channel is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. The information provided, while based on personal experiences, should not replace professional medical counsel. Always consult with your physician or another qualified health provider for any questions you have regarding a medical condition or treatment. Always seek professional advice before starting a new exercise or therapy...

Transcript
WEBVTT

00:00:00.299 --> 00:00:01.709
Good.

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We're walking back to another episode of survivor science soundbites.

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Today is December 13th.

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Friday the 13th.

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2024.

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Hope you had a great week.

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It's been a busy week for me over here.

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I did not release a full episode this previous Wednesday.

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So we're circling back to Monday's episode where I talked about, uh, how recovery is a grind.

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I think we talk about that a lot on this show.

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It is a grind.

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I want to get back into it.

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I want to talk about it.

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Wrap up the week.

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Had a lot of conversations, a lot of interesting things.

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I did not record an episode.

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Uh, I did not have one in the tank for this past Wednesday and, uh, Tuesday was my son's birthday, my youngest turn nine.

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So that was exciting.

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Very busy week on top of that.

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It's a very busy week for school.

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Wrapping up the term.

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It's just a, just a lot of work, a lot of things going on, but had a lot of great conversations, met a lot of great stroke survivors this week.

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Perhaps, you know, some of them.

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Um, Molly from what's Molly from I forgot, uh, beyond stillness.

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So she just had an episode with bill G.

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Check it out on YouTube, Spotify, apple.

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You name it?

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He's there.

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And then yesterday I got, had the pleasure of talking to, uh, Rachel Abasi.

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Abbassi.

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She is from recovery daily podcast.

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Uh, also a stroke survivor, recovering alcoholic.

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We had a great conversation, a lot of shared.

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Things commonalities between her and I.

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And, uh, yeah, just a lot of cool things going on in the community.

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Meeting new people, new friends got this, a content creator stroke server content creator, beat up this afternoon over the center.

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Um, and survivor science.

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Which I'm super excited about wish I had gotten an episode out on Wednesday just to kind of announce it through the podcast again.

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But it is what it is.

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Hopefully you have a good turnout this afternoon looks like a lot of people signed up and then, um, yeah, hopefully we'll do it again.

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I think it's going to be an ongoing series.

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Hopefully it's useful.

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Really looking forward to meeting other people, collaborating, seeing what opportunities are out there, what other people are working on, how we can support one another and the stroke community.

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Just really excited for that this afternoon.

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And also excited to finish my work for school.

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The big projects for both classes are due this week and then, uh, kind of wrap up next week.

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So things should slow down going into the final week, uh, before Christmas.

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So, what are we talking about today?

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Uh, you know, I just, I had a bunch of topics.

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I had a bunch of things.

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I was thinking about how to tie it back into.

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You know, What we talked about on Monday that it is a grind.

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There's a lot of discipline involved.

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It can be overwhelming.

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It's hard to figure out it's hard to know what to do.

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I was thinking about some topics that I think we'll talk about in the future.

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Some things that are just thought about when I was running this morning or like, You know, adaptive sports and coming.

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To a point in your recovery where you're adapting things and what does it look like?

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You know, there's adapting in the beginning, but do you want to adapt longterm?

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I kind of think just kind of on my own journey.

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I never wanted to adapt.

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I really wanted to and continue to want to figure out.

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Not necessarily chasing my old life or chasing how I used to do things a hundred percent.

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But I also am reluctant to adapt in certain areas because I still think I can make progress.

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Um, five years out.

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I'm 42 now.

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It's not easy.

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It's definitely a grind.

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And, you know, there's nothing wrong with adapting.

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It's just, I want to see how far I can go and how far I can push myself.

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Before I decide.

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Okay.

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Maybe.

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Adapting long-term in certain things does make sense, but I haven't gotten there yet.

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It was just something I was thinking about.

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It doesn't really pertain to this episode.

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You know, but it is kind of, I was thinking about discipline.

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How do we tie this all in?

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What are we thinking about?

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For the community, you know, being useful, being interesting as a survivor, I think that's helpful kind of ties into the content creation thing, which again, this afternoon is.

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The content creator meetup, which I'm excited about.

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That landed me on this topic that I literally found in an email.

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About a half hour ago as I was kind of unwinding from the gym before I hit record over here.

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And it's really about the concept of, uh, the journey that I've been on.

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And, and I, haven't done a great job at this sometimes.

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And a lot of times, For a number of reasons.

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But I'm thinking about the concept of show, not tell.

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And it's interesting because it's all kind of happens at one point, somebody emailed me or actually messaged me over on Instagram yesterday, and they're like, We'll Hey, you know, I love your story.

00:05:00.449 --> 00:05:04.079
Would you mind doing a video or a kind of a series or a thing?

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About.

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You know, a life in the.

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You know, behind the scenes daily life of your recovery, your stroke journey.

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And I was thinking this whole time, I've been doing Tik TOK for a number of years now.

00:05:17.069 --> 00:05:20.699
Not, not the first couple of years, but certainly after year two, I think.

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Got into ticktock.

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Uh, been reluctant to get over on Instagram, but I'm over there now finding it actually quite enjoyable.

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It's a good link for me, because I don't want to commit a hundred percent of Facebook.

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And I know there's a lot of survivors and a lot of support groups there.

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Some better than others.

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Most are useless, in my opinion.

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But Instagram is kind of that bridge.

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Over to that world where people are kind of on both and they may not be on Tik TOK.

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They may not be on X.

00:05:47.699 --> 00:05:50.790
They may not be on other social platforms like LinkedIn.

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They may not be on YouTube, but it's a good area where a lot of stroke survivors hangout.

00:05:56.939 --> 00:06:00.870
And I've been beating a lot more stroke survivors as a result of being on Instagram more.

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Which is really kind of good.

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I want to help stroke survivors.

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I need to find more stroke survivors in order to be able to help them.

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Uh, there are not a ton on X, which is unfortunate because that's kind of my preferred platform.

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Given my history gifted, given my.

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Experience in the web and working in that world.

00:06:19.980 --> 00:06:23.879
But again, all of it is kind of around content creation.

00:06:24.509 --> 00:06:29.250
About discipline about the grind and, and this concept of showing not telling.

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Now, couple of things I've struggled with this show.

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Don't tell for a couple of reasons.

00:06:35.279 --> 00:06:38.970
Again, as kind of a creator and I hate the word, but it is important.

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I don't have a better word for right now because I want to create content that helps people.

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I want to build the community.

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I want to build resources, things.

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I wish I knew earlier, things I wish I knew sooner.

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Sharon spread that word.

00:06:52.529 --> 00:06:54.720
You know, search engine optimization.

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SEO is still very much a thing.

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However people are relying on more video, more social media, more chat, GPT, and other platforms that are similar to chat GPT less on Google.

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They're they're not.

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They're not.

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They're not, not going to Google.

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It's just becoming a lesser.

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A less popular option.

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There are other options.

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But like video platforms and this is the perfect way, you know, to show, not tell.

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And my reluctance around a lot of it the first couple of years is like, I don't want to come off as though I'm bragging or I'm showing off.

00:07:31.319 --> 00:07:35.939
And that's probably me as an elder millennial having been around social media from the beginning.

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All the way back to Friendster and MySpace, Facebook, when you had to have a.edu, um, You know, before it became public.

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And.

00:07:46.829 --> 00:07:47.759
That is.

00:07:48.449 --> 00:07:50.399
The wrong mindset on my part.

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I really, I try very hard not to be as somebody that's showing off or look what I could do.

00:07:56.850 --> 00:07:58.079
None of that silly stuff.

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Like, I really just want to show people like here's where I started.

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Here's where I'm at today.

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Yes, it looks insane.

00:08:05.040 --> 00:08:06.269
It sounds insane.

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But it didn't happen overnight.

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It has been a slow long.

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Hard.

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Disciplined relentless grind and progression from a wheelchair to a Walker, to a cane, to an AFO.

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To crappy walking to less crappy walking did starting to run.

00:08:24.810 --> 00:08:26.009
And it was barely running.

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It's still barely running at this point.

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Although it definitely is running.

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It is out fast running.

00:08:31.769 --> 00:08:35.759
It is not superstar athlete, marathon runner.

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Like I do run a lot, but it takes more time than I would like it to take.

00:08:39.389 --> 00:08:46.710
Uh, Which is part of the reason I've scaled back a little bit on my mileage and really focused on like, okay, this is a good amount of running.

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This is a normal amount of running.

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Now let's incorporate weights in the last couple of months, I've incorporated more kettlebells.

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More.

00:08:56.039 --> 00:08:58.230
Exercises that are helping with shoulder stuff.

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Things I'm really refining where I'm at, which is why this is a grind.

00:09:03.629 --> 00:09:07.830
And again, I need to do a better job of even the topic of this podcast is show don't.

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Tell.

00:09:09.570 --> 00:09:15.389
And the recap and the main idea is really that required recovery requires consistency.

00:09:15.690 --> 00:09:17.279
So does content creation.

00:09:18.120 --> 00:09:24.389
Small disciplined actions, small videos, Tibbits, helpful things, showing people the progression.

00:09:24.419 --> 00:09:25.980
This didn't happen overnight.

00:09:26.639 --> 00:09:28.889
You know, I didn't go from 530 pounds in one day.

00:09:28.889 --> 00:09:32.610
Did two 60 the next again, that's been a five-year process.

00:09:33.389 --> 00:09:35.100
I was talking about it with Rachel last night.

00:09:35.879 --> 00:09:38.100
That episode should be out next week with her.

00:09:38.909 --> 00:09:40.590
It's all about progressions.

00:09:40.679 --> 00:09:46.440
I didn't intentionally break down the goals, but you know, in a way I did, I knew from the beginning, it wouldn't change overnight.

00:09:46.470 --> 00:09:47.070
I tried.

00:09:48.149 --> 00:09:49.139
I really tried.

00:09:49.259 --> 00:09:52.169
As stupidly tried to fix everything at once.

00:09:52.169 --> 00:09:53.309
That was a bad approach.

00:09:53.340 --> 00:09:58.500
I've talked about that a number of times, but it is, you know, Linking it back to discipline.

00:10:00.210 --> 00:10:01.889
It's been a daily effort.

00:10:02.039 --> 00:10:04.590
Every day I get up, I'm thankful to be alive.

00:10:04.620 --> 00:10:06.090
I'm grateful to be alive.

00:10:06.120 --> 00:10:08.070
I had to put my feet on the floor.

00:10:08.429 --> 00:10:08.970
Get up.

00:10:09.629 --> 00:10:12.870
Stretch, do all the things I don't want to do.

00:10:13.259 --> 00:10:17.970
That's what really, what stroke cover is about is doing the things consistently.

00:10:19.830 --> 00:10:22.289
That you don't want to do because they are important.

00:10:23.009 --> 00:10:24.870
The more you can do the better.

00:10:24.960 --> 00:10:27.809
The more focused you put on certain things.

00:10:27.840 --> 00:10:29.580
Don't try to do everything at once.

00:10:30.210 --> 00:10:31.919
Every episode, I feel like I say this.

00:10:32.789 --> 00:10:34.500
Have your list, heavier goals.

00:10:34.529 --> 00:10:35.580
Break them down.

00:10:36.899 --> 00:10:37.769
Feed on the floor.

00:10:37.799 --> 00:10:38.159
Okay.

00:10:38.159 --> 00:10:39.419
Step one, check.

00:10:39.539 --> 00:10:44.460
You know, you may not be a checkbox person, but like that's, you know, it's silly, but it's, it's important.

00:10:45.120 --> 00:10:45.840
Feet on the floor.

00:10:46.230 --> 00:10:46.799
How am I feeling?

00:10:47.309 --> 00:10:47.669
All right.

00:10:48.000 --> 00:10:48.929
What can I do today?

00:10:48.990 --> 00:10:49.769
Do I feel.

00:10:50.549 --> 00:10:51.960
Like I get a great night's sleep.

00:10:52.049 --> 00:10:52.169
Do.

00:10:52.559 --> 00:10:53.460
And assess your sleep.

00:10:53.490 --> 00:10:54.210
How am I feeling?

00:10:54.240 --> 00:10:54.929
A little groggy.

00:10:54.990 --> 00:10:55.379
Okay.

00:10:55.409 --> 00:10:57.210
Take a minute to take an extra minute.

00:10:57.210 --> 00:10:58.169
Take an extra step.

00:10:59.639 --> 00:11:01.769
Again, it's, it's about progression.

00:11:01.799 --> 00:11:04.860
It's about what you can do each day to improve, to get better.

00:11:06.690 --> 00:11:08.610
Um, these are tangible things.

00:11:08.610 --> 00:11:11.669
They're feelings you're feeling, uh, allow yourself to feel them.

00:11:12.450 --> 00:11:13.110
And assess.

00:11:13.500 --> 00:11:14.370
Where you can go.

00:11:15.090 --> 00:11:17.399
Just keep taking that next step throughout the day.

00:11:17.700 --> 00:11:24.090
Sounds ridiculous, but really when you think about it and you break it down and you review your days, It probably goes a lot like that.

00:11:24.210 --> 00:11:25.590
Uh, at least internally.

00:11:26.370 --> 00:11:38.940
You know, These these efforts and the way you show them, whether it's on social media or just to how you show them to yourself, you can create self accountability, you know, build that motivation that connects you with yourself.

00:11:39.570 --> 00:11:43.799
I think sharing on social media is helpful because it can show other people.

00:11:44.220 --> 00:11:46.470
You know, It helps you stay accountable.

00:11:47.129 --> 00:11:50.370
It helps show other people that, Hey, this is possible again.

00:11:50.429 --> 00:11:51.509
It's not about showing off.

00:11:51.509 --> 00:11:52.049
It's about.

00:11:53.190 --> 00:11:56.009
You know, sharing because you want to keep yourself accountable.

00:11:57.210 --> 00:11:58.559
Other people cheering around.

00:11:58.919 --> 00:12:00.269
You gotta be careful with that though.

00:12:00.269 --> 00:12:05.820
You don't want people cheering you on prematurely, but you do want them to kind of, you know, everybody wants a little.

00:12:06.539 --> 00:12:09.659
Pat on the back to, to, to the horn to kind of keep going, like.

00:12:10.860 --> 00:12:12.059
That's how it started with running.

00:12:12.090 --> 00:12:18.000
I mean, a really, I did it for myself, but I was posting a lot about it the first year, at least on X and Twitter.

00:12:18.809 --> 00:12:21.419
And I met a couple of great people that I still talk to over there.

00:12:22.139 --> 00:12:25.440
About running and it's, it's, it's motivating to see what they do.

00:12:25.470 --> 00:12:28.500
I try to make sure, you know, I'm staying consistent.

00:12:28.529 --> 00:12:30.090
I haven't really gotten off track.

00:12:31.559 --> 00:12:33.269
Um, we're just lucky.

00:12:33.269 --> 00:12:33.870
It's fortunate.

00:12:34.139 --> 00:12:36.960
I really I've only missed four days since I've started total.

00:12:37.950 --> 00:12:38.759
And I got to be honest.

00:12:39.299 --> 00:12:41.789
I don't really need the accountability anymore.

00:12:41.789 --> 00:12:46.590
Cause I I've gotten to a place with running that if I don't run, I just feel like shit, to be honest.

00:12:47.279 --> 00:12:50.070
And that's why I do it every day, because I know it sucks.

00:12:50.190 --> 00:12:51.570
I don't really want to do it.

00:12:51.570 --> 00:12:52.590
If I'm being honest.

00:12:53.190 --> 00:12:54.360
But I want the feeling.

00:12:54.389 --> 00:13:00.570
I know I've built in the work to get the feeling, and I know I want to feel better each and every day.

00:13:02.039 --> 00:13:04.049
And running really helps me do that.

00:13:04.049 --> 00:13:06.809
It helps me cognitively it helps me emotionally.

00:13:06.809 --> 00:13:08.340
It helps me think out my thoughts.

00:13:08.340 --> 00:13:10.320
It helps me kind of just escape.

00:13:11.669 --> 00:13:12.720
In a different way.

00:13:13.590 --> 00:13:16.200
It helps me, you know, releases endorphins.

00:13:16.200 --> 00:13:19.980
It just gets my mind and my body really going for the rest of the day.

00:13:20.820 --> 00:13:21.240
Yes.

00:13:21.240 --> 00:13:24.299
Sometimes I could scale it back and probably don't need to do it as much.

00:13:25.139 --> 00:13:32.879
But I also enjoy it and it's, it's, it's, it's really transformed my life and I feel very lucky and fortunate to be able to do it now.

00:13:33.659 --> 00:13:36.480
And frankly, there was a time when I wasn't sure if I'd ever walk again.

00:13:36.509 --> 00:13:39.720
So, you know, Again, I worked remotely for a long time.

00:13:39.720 --> 00:13:42.299
I'd neglected my body for about 10 years, at least.

00:13:43.110 --> 00:13:52.139
I feel like five years in, I'm kind of paying it back to my body to really in my forties, you know, I want to live a long life and I want to live a healthy life.

00:13:53.009 --> 00:13:54.779
Hopefully the next 30, 40 years.

00:13:55.409 --> 00:13:58.620
And I know that if I, if I continue on this track, now that I'm on.

00:13:59.429 --> 00:14:00.600
I won't feel.

00:14:01.409 --> 00:14:04.529
The way some people feel in their 50 sixties and seventies.

00:14:04.590 --> 00:14:06.419
Um, hopefully I continue that.

00:14:07.230 --> 00:14:15.149
And if it continues to help in the way that it's helping now, I, I fully suspect, you know, I won't be in a significant amount of pain.

00:14:15.779 --> 00:14:22.470
Sure we all get older and things change and things happen, but you know, the goal is to really set myself up for the next half of my life.

00:14:23.429 --> 00:14:24.269
Uh, God willing.

00:14:24.330 --> 00:14:37.679
So yeah, again, uh, back to sort of the, the things is like, when you show your progress, you're not only tracking your own growth, but you're, you are inspiring others in the community to kind of take action and show them that, Hey, this isn't impossible.

00:14:37.679 --> 00:14:38.700
Here's why I started.

00:14:39.360 --> 00:14:41.399
Some people, everybody starts in different place.

00:14:42.720 --> 00:14:48.600
You know, I remember in inpatient rehab, January 20, 21, I was officially brought in there.

00:14:48.659 --> 00:14:50.789
I got so annoyed in the beginning.

00:14:50.789 --> 00:14:54.870
I think it actually helped motivate me because I would see the 70 and 80 year olds.

00:14:55.409 --> 00:14:58.379
Who had also just had a stroke and they were actually already walking.

00:14:58.409 --> 00:14:59.549
They didn't have a wheelchair.

00:14:59.549 --> 00:15:01.080
They weren't paralyzed.

00:15:02.129 --> 00:15:04.320
They were doing laps and I was like mother F.

00:15:05.879 --> 00:15:09.899
I'm half their age and I am in a wheelchair and I can't do anything.

00:15:10.080 --> 00:15:10.769
So I.

00:15:11.970 --> 00:15:13.889
Immediately got, you know, annoyed.

00:15:15.120 --> 00:15:16.500
I don't think that's fair to them, but.

00:15:17.309 --> 00:15:17.970
It's the truth.

00:15:18.000 --> 00:15:18.570
I got to know it.

00:15:18.570 --> 00:15:20.220
I was like, wait, I'm half their age.

00:15:20.250 --> 00:15:21.570
And I'm twice as bad shape.

00:15:21.600 --> 00:15:21.870
Like.

00:15:22.470 --> 00:15:23.460
All right here.

00:15:23.519 --> 00:15:26.309
I got to figure this out and, and that was really motivating.

00:15:26.370 --> 00:15:35.340
Honestly, seeing other people that were, you know, Quite a bit older than me having a stroke, walking around freely, doing whatever they wanted.

00:15:35.399 --> 00:15:36.570
Most of their motor skills.

00:15:36.629 --> 00:15:37.169
One place.

00:15:37.200 --> 00:15:38.460
I didn't know them personally.

00:15:38.460 --> 00:15:41.070
I did talk to a number of people in therapy because it was there.

00:15:41.730 --> 00:15:43.860
Two different stints for about 30 days a piece.

00:15:44.730 --> 00:15:49.200
And I don't know everybody that I saw, so they might've had, you know, more emotional or.

00:15:49.799 --> 00:15:54.299
Certain different things that I didn't have, but yeah, the walking thing certainly motivated me.

00:15:54.450 --> 00:15:56.309
I think from the beginning I wanted to walk.

00:15:56.399 --> 00:15:58.080
I think a lot of people that are paralyzed.

00:15:58.740 --> 00:16:01.470
Who are in a wheelchair and told certain things.

00:16:01.500 --> 00:16:08.009
Like, I think if you're in a wheelchair, You know, your first step is like, I want to get to the Walker because if I can get to the Walker, I can kind of figure it out from there.

00:16:08.639 --> 00:16:10.440
Not as easy as it sounds, but yeah.

00:16:10.529 --> 00:16:13.980
You know, it's kind of the progression at least.

00:16:13.980 --> 00:16:17.789
And you know, it was inspiring to me to at least get to the Walker.

00:16:17.789 --> 00:16:19.440
Cause then I knew once I was at the Walker.

00:16:20.610 --> 00:16:21.090
Okay.

00:16:21.210 --> 00:16:25.409
Abe we'll make progress, obviously not where I wanted yet, but getting from the wheelchair.

00:16:25.679 --> 00:16:27.779
To the Walker was a kind of a big step.

00:16:27.809 --> 00:16:29.669
Um, and it is a big step.

00:16:30.690 --> 00:16:33.000
I know it doesn't feel like that sometimes, but it certainly is.

00:16:34.500 --> 00:16:34.980
So, yeah.

00:16:35.009 --> 00:16:41.129
Back to the show and tell what does show not tell, look like, you know, it's great to tell your story.

00:16:41.129 --> 00:16:42.210
I think that's important.

00:16:43.169 --> 00:16:48.090
But Jay, again, sharing, showing in recovery, it's beyond just posting videos.

00:16:48.120 --> 00:16:50.970
You know, it certainly helps, uh, maybe first steps.

00:16:51.330 --> 00:16:53.370
It does seem like some content creators.

00:16:53.399 --> 00:16:55.080
I have help.

00:16:55.440 --> 00:16:57.899
I wasn't really able to show those things.

00:16:57.929 --> 00:16:59.909
Uh, cause my wife is handling the kids.

00:17:01.110 --> 00:17:02.970
I don't think my therapist wants to take videos.

00:17:03.059 --> 00:17:04.380
You know, I didn't really care.

00:17:04.380 --> 00:17:06.390
I was just trying to work on myself in the beginning.

00:17:07.470 --> 00:17:14.098
But anything you're doing sharing P you know, I see a lot of videos of people sharing their first steps, whether it's with a cane or a Walker.

00:17:14.578 --> 00:17:17.068
Things that they find that have made things easier.

00:17:17.098 --> 00:17:18.720
That's certainly helpful.

00:17:18.750 --> 00:17:23.608
Um, you know, these are some of these things are thinking, so I'm thinking about like I talk about breathwork a lot.

00:17:23.789 --> 00:17:26.789
Um, but I really should be showing more of these things that I do.

00:17:27.299 --> 00:17:28.799
The meditation, how do I do it?

00:17:28.859 --> 00:17:29.549
What do I do?

00:17:29.609 --> 00:17:29.970
You know?

00:17:30.779 --> 00:17:31.859
Again, why it matters.

00:17:32.789 --> 00:17:34.289
Really it's a mindset change.

00:17:34.319 --> 00:17:35.579
Don't think of it as bragging.

00:17:35.579 --> 00:17:39.720
Think of it as things you wish you saw sooner than you found them out.

00:17:39.750 --> 00:17:44.009
Like that's, that's a lot of my stroke recovery has been in many stroke, Kyrie.

00:17:44.940 --> 00:17:53.940
Stroke survivors that have been recovering for a longer time than me, you know, always say they started this or that because they, they wish they had these resources when they had their stroke.

00:17:53.940 --> 00:18:00.539
Because, you know, I think back to bill G or Molly, who was 21 when she had her stroke and is now 40.

00:18:01.259 --> 00:18:07.769
Molly, you know, is, is, um, From beyond stillness and Molly's gr.

00:18:07.829 --> 00:18:14.670
Uh, you know, I want to have her on, let her tell her story, but, um, You know, in 2005 or six, give or take.

00:18:15.059 --> 00:18:16.890
There was probably nothing for her.

00:18:16.920 --> 00:18:19.619
Uh, the social media was in its very infancy.

00:18:19.619 --> 00:18:22.980
I don't think anybody on my space was sharing stroke, recovery stories and journeys.

00:18:23.519 --> 00:18:25.109
YouTube was barely a thing.

00:18:26.099 --> 00:18:28.019
Even bill does 12 years out.

00:18:28.079 --> 00:18:31.799
It was still barely being shared and shown and he had to figure out a lot of things.

00:18:31.829 --> 00:18:32.670
Do you have the hard way?

00:18:32.670 --> 00:18:35.849
Same thing with Jason Lopes, you know, he's 10 years out from his first stroke.

00:18:37.079 --> 00:18:42.210
Very similar, you know, even 2019 myself, like there wasn't a ton of stuff there.

00:18:43.259 --> 00:18:53.670
I don't know if I just didn't find it all in the beginning, but there was barely books in the beginning, uh, back in 2019, you know, it seems like the last four or five years things have really changed, obviously.

00:18:54.388 --> 00:18:55.439
More people are sharing.

00:18:55.439 --> 00:18:55.619
More.

00:18:55.619 --> 00:18:56.669
People are speaking out.

00:18:56.669 --> 00:19:00.869
I certainly have found a lot more people over probably the last two years than I found the first five years.

00:19:01.378 --> 00:19:02.369
Or for three years.

00:19:02.398 --> 00:19:06.119
Um, So, yeah, I think that's, that's really why it matters.

00:19:06.509 --> 00:19:08.609
It does matter because there's not going to be.

00:19:09.269 --> 00:19:12.000
It doesn't appear it's those choke is going away anytime soon.

00:19:12.000 --> 00:19:15.299
There's never going to be that magic pill, at least not for a long time.

00:19:15.960 --> 00:19:18.210
So sharing these things that we learn is important.

00:19:18.240 --> 00:19:21.569
I really cannot stress that enough and I cannot do it alone.

00:19:21.599 --> 00:19:24.809
And none of us out there in the content creator space.

00:19:25.470 --> 00:19:30.900
Whether you're doing it, full-time, part-time aspiring, like just share whatever you can, whatever you think would be helpful.

00:19:30.900 --> 00:19:31.890
Things that like.

00:19:32.369 --> 00:19:35.700
Again, you wish you knew sooner things, things you've read things.

00:19:35.700 --> 00:19:37.019
You've researched things.

00:19:37.619 --> 00:19:39.869
Anything at all, literally anything.

00:19:39.900 --> 00:19:42.480
I mean, I probably should record this after the call later today.

00:19:43.170 --> 00:19:43.589
But yeah.

00:19:44.190 --> 00:19:54.059
So many things to share, and again, it helps build that resilience and that discipline for yourself and sharing helps build accountability for yourself.

00:19:54.750 --> 00:19:58.559
You start sharing, you start getting some likes, you know, you want to show up for your community.

00:19:59.369 --> 00:20:07.079
Even in my own case, even in the center, you know, the more I post, the more I share, like it's motivating, the more I can help answer questions for other people.

00:20:08.160 --> 00:20:09.450
It's all helpful stuff.

00:20:09.480 --> 00:20:12.660
And there isn't a lot out there for us as community.

00:20:12.660 --> 00:20:13.619
The more we help.

00:20:14.670 --> 00:20:16.410
Fellow survivors, the more.

00:20:17.190 --> 00:20:21.630
We can help other survivors figure things out quickly, because again, there's, there is research.

00:20:21.630 --> 00:20:24.539
There is stuff out there, but it's not well.

00:20:25.079 --> 00:20:25.829
Documented.

00:20:25.859 --> 00:20:26.789
It's hard to find.

00:20:26.789 --> 00:20:28.019
It's not even helpful.

00:20:28.019 --> 00:20:28.769
Half the time.

00:20:29.400 --> 00:20:31.710
The bigger organizations, when you Google things.

00:20:31.859 --> 00:20:34.470
You know, they have stuff, but is it the best for you?

00:20:34.470 --> 00:20:37.170
Like sharing relatable, actual stuff that's working.

00:20:38.160 --> 00:20:42.690
For you is the best way for other people to find things and test and see if it works for them.

00:20:43.470 --> 00:20:46.079
And I think that's really, what's great about Tik TOK and, and.

00:20:46.829 --> 00:20:53.309
A lot of people answering questions over their Instagram reels, sharing stories, stories, whatever, um, anything, even a posts.

00:20:54.000 --> 00:20:58.019
Even Facebook, you know, some of it, most of it in is not great on Facebook.

00:20:58.019 --> 00:20:59.759
I'll be honest, but I'm sure it could be better.

00:20:59.759 --> 00:21:02.309
I'm sure there are people who want better.

00:21:02.309 --> 00:21:03.269
So yeah.

00:21:03.960 --> 00:21:10.140
Again, the action isn't just about doing and sharing, but it's just about what you've done so that others could see what's possible.

00:21:10.859 --> 00:21:12.240
Uh, let's see there.

00:21:12.240 --> 00:21:15.630
We're getting a little long we're at the 21 minute mark and these supposed to be under 20 minutes.

00:21:15.630 --> 00:21:17.190
So I guess I've done a bad job of that.

00:21:17.190 --> 00:21:21.689
So, uh, Uh, let's see where we're at, where we're at, where are we at?

00:21:21.689 --> 00:21:22.109
Where are we at?

00:21:22.138 --> 00:21:23.009
Let's bring it all together.

00:21:23.009 --> 00:21:23.249
Okay.

00:21:23.249 --> 00:21:23.638
We're going to re.

00:21:23.729 --> 00:21:24.719
Recovery is a grind.

00:21:24.719 --> 00:21:28.439
We talked about that this week, discipline gets us through it, but showing those small steps.

00:21:29.249 --> 00:21:34.559
You know, it's even great for you to reflect back on and look back at over the course of a year, two years, three years.

00:21:35.609 --> 00:21:39.148
And again, it's all about, you know, share stories of things you wish you knew earlier.

00:21:39.148 --> 00:21:44.939
If you're several years out, you know, uh, I don't think there's any lack you can never share.

00:21:45.388 --> 00:21:45.989
Too much.

00:21:46.048 --> 00:21:50.608
I mean, you can, but like, Share the things that other people aren't talking about.

00:21:50.638 --> 00:21:52.528
I mean, it's not, it's not a competition.

00:21:52.558 --> 00:21:54.148
I wouldn't think of it that way and think about.

00:21:54.959 --> 00:22:03.058
Just the stuff that you wish you knew sooner, the things that you found out through hard work and effort, even if somebody else has come across the same thing at some point, like.

00:22:03.808 --> 00:22:05.038
The way social media works.

00:22:05.338 --> 00:22:07.439
Even the best videos may not necessarily get.

00:22:07.888 --> 00:22:09.358
Get seen by everybody still.

00:22:09.388 --> 00:22:10.439
Don't be afraid to share.

00:22:10.499 --> 00:22:16.558
Don't rip people off, but you know, if you had a similar experience, cost set, call it out, share, you know, tag somebody.

00:22:16.588 --> 00:22:21.088
If somebody made a video and you, they had a particular experience and you're just a pretty similar.

00:22:21.868 --> 00:22:23.729
And you want to reference their video reference it.

00:22:23.729 --> 00:22:24.929
It's a great word way.

00:22:24.959 --> 00:22:27.509
I believe collaboration is the best way to really.

00:22:28.709 --> 00:22:29.338
Build the stroke committee.

00:22:29.729 --> 00:22:32.219
Stroke, survivor community even bigger and better.

00:22:32.398 --> 00:22:34.259
Um, collaborations is the best way.

00:22:34.288 --> 00:22:34.558
Again.

00:22:34.558 --> 00:22:37.138
I wish there were so many more resources when I started.

00:22:37.888 --> 00:22:41.219
Uh, kudos to everybody out there doing great work, kudos to everybody else.

00:22:42.088 --> 00:22:50.249
Um, you know, going through the grind, really working through it, uh, disciplines showing up, continuing to show up, continuing to push, continuing to do the work.

00:22:51.269 --> 00:22:53.489
I'm going to say my voice suppor this afternoon.

00:22:53.519 --> 00:22:55.979
Um, but yeah, I think we'll, we'll leave it there.

00:22:56.009 --> 00:23:02.098
Uh, Uh, next week you got a couple of topics that I hit on the beginning probably might circle back to those early next week.

00:23:02.098 --> 00:23:04.318
And then again, we'll have a full episode next Monday.

00:23:04.798 --> 00:23:09.328
Another survivor soundbite on Monday before the full episode on Wednesday.

00:23:09.898 --> 00:23:13.019
And yeah, everybody, you know, if I, if you you're able to

00:23:13.019 --> 00:23:14.429
00 PM.

00:23:15.118 --> 00:23:15.689
Eastern.

00:23:15.719 --> 00:23:16.499
Uh, awesome.

00:23:16.499 --> 00:23:18.898
If not, you know, maybe next time and, uh, yeah.

00:23:19.618 --> 00:23:21.868
Have a great weekend and a Miami.